[dennisParticipant]

Hi, I was on Lenalidomide 5mg for 4years and December 2024 was taken off it as it was destroying my white blood cells 0,04 instead of 2500 -7500 micros. Has anyone else had this done. I have not been on any other treatment. See my specialist in a couple of weeks.

[dazzParticipant]

Hi there,
Yes I was taken off as it wasn’t working for me and side affects were just to bad so they took me off and gave me a 3wk break to get it outta my system and stuck me on a trial drug…isatuximab.
I am updating everyone on how that is going on a different thread.
Hope they restart you on something soon
Daz

[myeloma2016Participant]

Hi dennis
I have been on lenalidomide 10ml for 4 years and half after ASCT as mentanance. I’m still taking the medication. After ASCT I have it evey day for two years. After two years My specialist advised me to take it for 3 days and one day off medication to help my WBC. Sometimes im off the pill for a week. I try to be on the maintanance pill till relaps. It seems it works for me. Please Le me know what medicines your specialists prescribed for you.

All the best

[tony642Moderator]

Hi there,

I am on Lenalidomide as well, a maintenance dose of 10mg per day, although I was on 40mg a day at one time. I have 3 weeks on and 1 week off, and it is holding paraproteins and light chains down, so fortunately working for me.

Regards, Tony

[jb2514Participant]

Hi
I’ve been on Lenalidomide 10mg, 3 weeks on, 1 week off, since my SCT nearly18 months ago. This is described as a maintenance dose
Working for me

Regards, John

[Author]

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