[andygParticipant]

Hi all
Just thought I'd do an update fuelled by Dex!
Hmmm not sure if I've mentioned this, if I have sorry for the repeat – chemo is killing my memory :-/
At my start of cycle 13 or end of cycle 12 consult whichever way you look at it – oops that's the Dex rambling! Anyway my consultant referred me on to a spine? surgeon to see if he could do anything for my back. My appointment came through the post giving me a date May 24th 🙁 we're booked to be in Greece that week! Rang up for a change of appointment June 21st!! Told my specialist nurse at a support group meeting and she relayed it on to my consultant. She used her charm and got my appointment brought forward – result 😉 I had that appointment yesterday(Saturday) and I'm now going to be booked in for some kyphoplasty on two of my vertebrae. He told me it'll probably be done in June after he tried to scare us to death with what could go wrong.
Skipping back a day to Friday I went for my blood tests, zometa, my carrier bag of drugs and my monthly catch up with my consultant. My bloods were ok – not great but they never are Neuts 0.9 Hbc 10.1 Plts 87 got to wait till Tue/Wed for my PP's results.
Now I've started cycle 14 had my Dex this morning, hmm it's yesterday morning now, and the lovely cyclophosphamide at tea time leaving my Revlamid till just before bed. Not forgetting all the other drugs they so generously supply.
Well that's me up to date I think – if anything else springs to mind I'm sure doctor Dex will keep me awake to ramble on some more.
Sorry my post is longer than the little update I planned but I'm blaming the drugs.

Best wishes on your individual journeys and remember EVERY DAY IS A GIFT

Andy xx

[jillsParticipant]

Hi Andy,

Thanks for the update, interesting to hear you take Revlimid at bedtime, do you find that a better time than say, mornings? Mum has been taking hers after breakfast- mainly my doing as I do a chart for her which she follows otherwise she would not manage to take everything – too confusing for an 84 year old 'on drugs'!
Please keep posting your updates, it is really helpful to hear how you are doing, hope the PP results are improved.
Take care,
Jillx

[eveParticipant]

Hi Andy

The surgery should help with pain so bring it on.
Thanks for news on Keith,funny we never met,but you do find yourself wondering are people alright 🙂

You have been through an awfull lot of treatment s,I have alittle in sight to how you feel,I hope a Donna comes forward soon better than a doña as in one of my post to you:-P

I blame I pad for mistakes as it predict s words,Tom just thinks I am on the G&T .

I know what you mean by chemo brain,alas SlimsHas carried on after chemo stopped,lets hope that's all it is.Love Eve

[HelenParticipant]

Hi Andy
Revlimid is certainly doing its stuff for you, Have a good trip to Greece, some sun certainly lifts the spirits.

Hi Jill I always take the Revlimid at night too as it makes me weary about an hour after I take it, but everyone differs
Love Helen

[VickiParticipant]

Hi Andy

Great to hear how you are doing….dex or no dex! Hope that the tinkering with the back will give you some relief!. This pain no gain thing wears a bit thin after a while doesn't it! We hope that you and steph have a great time I. Greece and those pps go in the downward direction after that sunshine 🙂

Like your mantra every day is a gift 🙂

Take care

Vicki and Colin x

Ps these iPads are a nightmare eve, if you don't check you get all sorts of random words and I haven't even had a drink tonight! Hope you and slim are ok, it's such a bugger he's relapsed!

Vicki

[andygParticipant]

Hi Vicki and Eve.
I also use an iPad, the mini version in my case, and I find it a lot easier to post now 😉 mind you I was using an iPhone previously 😀

Hi Helen.
The sun does lift the spirits and I think the last trip we had to Greece gave me a real boost and I'm sure it gave me a new outlook to life.

Hi Jill.
I take my Revlamid at night because I find, like Thalidomide, it helps me get off to sleep – except for the Dex days :-/

Vicki I must confess I pinched my "new" mantra from a support group meeting.

Helen now that the weather has improved slightly we'll have to arrange to meet up for a coffee and a good old chin wag.

Every day is a gift
Andy xx

[bandityogaParticipant]

Hi Andy

Enjoy your holiday in Greece. Hope all goes well with the surgery.

Ian not mobile yet.

Maureen

[tomParticipant]

Hi Andy

I think the reason your not on here often is that you are always out on the Razzle Lol.

Good Luck on Cycle 14 and with "Chemo Brain" soon you wont remember how bad it was Lol.

And listen Folk it isn't Eve's I Pad it is the GT 😉

Tom Onwards and Upwards

[Author]

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