[stevo72Participant]

Hi guys hope you're all ok and battling on , I've decided the the name multiple myeloma sounds a bit to grand and pompus for this disease so I think we should rename it something so awful and embarrassing that it wont dare show itself again in public or marrow for that matter until a cure is found, all and any suggestions welcome, p.s.I like to get my hands on the b××××××s who thought this was the place to advertise fake passports grrrr , health and happiness to all xxx

[tomParticipant]

Hi Steve
I am doing great thanks, hope you are same.

Now a new name lol am told I can't cuss lol, and yes the spammers need casterating and am up for that job.

Stay well Steve and if a name crops into my head al post it lol

Tom Onwards and Upwards

[stevo72Participant]

Hi tom glad your doing well, I start my cycle 8 today of vcd so looking forward to a bit of remission time after, and try and have a bit of time without tremors or dizzy spells if I can remember what thay feels like lol

[tomParticipant]

Hi Steve

Good luck on cycle 8 and I hope the side effects are low.
As for trying to remember what it's like without the side effects well trust me it won't be long till you can't remember side effects.
Stay Well

Tom Onwards and Upwards

[BADGERParticipant]

Well done Stevo

lets hope you have a break after eight or one over the 8! i have had a temporary break from velcade been in hospital with a chest infection temp of 39 and all that, after a few days on IV anti b,s nearly back to normal as for MM Murky Mud Blood disorder from the depths of hell come to mind:-
Keep well love Jo x

[stevo72Participant]

Hi jo glad your doing better, just had round 1 of this last course pp down to22 which is better than 125 lol, doc is hoping I get a couple of months break at least and when the dirty mud blood lol returns ill have ctd, how didi you find side effects of thalidomide? Lots of love stevy xxx

[BADGERParticipant]

hi Stevo
CDT was ok for me had a bit of PN in my feet two outer toes on each foot went very numb but not painful so i could live with that and at night it gave me a good four hours sleep even on the DEX time, doesn't suit everyone but it did me
Keep well;-)
Love Jo x

[Author]

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