[susieParticipant]

I’ve just got MGUS, first diagnosed 2 yrs ago, tho my paraprotein was 30 when, 3 yrs ago, I had pre-op bloods done and its wasn’t acted upon. Since then my pp has been 31, 21, 26, now its gone up to 36. My consultant says he’s not too concerned, all the other tests are ok but I’m to start 3 monthly checks instead of 4 monthly.
I am a bit concerned. Does anyone think its to worry about.?

[tonyfParticipant]

Hi Susie, I can see why you are concerned. I am no expert but I would have thought that a pp level of 36 would trigger some form of treatment. I was diagnosed with myeloma with a pp reading of 44, my chemo treatment started, followed by a stem cell transplant. My last pp reading 15 months after stem cell transplant was 2.2 having risen from 1.9. At present I am not taking any medication and see a specialist every 3 months. I am worried about the small rise in my pp’s, my consultant is not at all concerned, same as yours. So maybe the answer is not to worry, same goes for you, if all of your other readings are ok go for the check ups and rely on the consultant.
Best of luck
Tony F

[Author]

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