MGUS with CRAB and symptoms

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    danascully
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    Good evening

    Hope you’re all doing ok. I’ve been a follower of this forum for a while, recently been diagnosed with MGUS late 2024 after bloods raised concerns with my Immunologist.

    Long story short – I have MGUS but have increase in symptoms such as reoccurring infections with very high fever (38.9-39.3), anemia and bone/joint pain. Feeling so tired and in pain most days not to mention fighting off viruses weekly.

    I’m due to see my Haematologist next month (who is excellent) where I will explain the changes. I’m hoping he will look into the changes and me showing symptoms.

    Anyone else experienced a progression like this? If so, how was it managed?

    Thanks in advance

    Dana

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