MM info pls

This topic contains 4 replies, has 4 voices, and was last updated by  The2lous 12 years, 2 months ago.

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  • #85595

    The2lous
    Participant

    Hi ya all, I have visited and viewed this site many times and gained some valuable info along the way, my dad has had MM for 2 yrs he is or I should say was a fit and active 70 year old man, my dad had a lump on his rib caste last year that he received radio for them chemotherapy, about 2 months after chemotherapy the lump came back but was not painful and Drs were just monitoring it, then about 6 weeks ago my dad became con fussed and very agitated, I took him back to his MM dr and expressed my concerns and also asked if it could be anything to do with his MM, the dr said no and to take him to his own GP which we did, in the mean time the confusion was getting very bad and we had to care for him 24hrs around the clock as he couldn't do anything he just wasn't functioning at all, after 4 weeks of struggling and see my dad getting worse everyday I took him along to A&E were he was admitted, after many test such as ct scan, MRI scan and lumbar punch, we have just been told that the MM has spread to his brain and there is no treatment available to him, I can find no info on this on the net and it seems the Drs don't know that much about it either, if anybody knows of any info I would be very grateful .

    Many thks

    #85596

    ellen
    Moderator

    Thank you for posting on the discussion forum. My name is Ellen Watters and I am one of the Myeloma Information Specialists at Myeloma UK

    I am sorry to hear your dad has been told his myeloma is in his brain. I hope you don't mind me responding but this is an extremely rare complication and I don't think any of the discussion forum users will be able to answer your question or will know of anyone in a similar situation.

    Unfortunately, myeloma which is affecting the brain is difficult to treat. Doctors may consider giving chemotherapy via lumber puncture into the spinal fluid (sometimes called an intrathecal injection) which helps the chemotherapy get into the brain better than the normal oral or intravenous routes. This method of giving chemotherapy may be something worth discussing with your dad?s doctors to see if this is an option for him.

    If you would like to call the Myeloma Infoline on 0800 980 3332 I or my colleague Maggie will do our best to answer any questions you have to help clarify things. Alternatively, if you prefer you can email askthenurse@myeloma.org.uk

    Kind regards

    Ellen

    #85597

    tom
    Participant

    Hi Jacqueline

    So Sorry you had to join the site but a warm welcome to you and your Dad.

    Ellen is correct well about me anyway I dont know anything nor have I read anything about MM in the brain I just wanted to welcome you to the site and wish your dad a Good Journy with his MM.

    Tom "Onwards and upwards"

    #85598

    mhnevill
    Participant

    Hi Jacqueline

    So sorry that your Father has this rare development of myeloma.

    I send you my love and prayers.

    Mavis

    #85599

    The2lous
    Participant

    Hi ya Tom and Mavis

    Many thks for your warm welcome

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