[CluckyParticipant]

Noticed your profile says your Dad started dialysis Jan 2013, how are things going?

luv
Clucky
(Mal & Bruce) xx

[jackie0503Participant]

Hi Martin
Hope you don't mind me sending you a message?
My mum has been diagnosed with mm and she has got kidney failure. She has dialysis 3 times a week. Am I right in thinking that your kidneys have gotten better over a long period of time? I keep seeing that people are told to drink plenty of fluids but my mum has been told to only drink a maximum of a litre a day???
Thanking you in advance for your reply
Kind regards
Jackie

[martinwardParticipant]

Hi Jackie

I am sorry to hear your mum is in dialysis. Yes, I have been lucky in that I have been able to recover much of my kidney function from the 11% when I was diagnosed in August 2009. Being really honest this has been a combination of good luck and the implementation of a long term strategy to regain health. I cannot reply to you quickly as it will take me a while to write down my approach (I am a carer as well as having myeloma and this takes much of my time). I will respond fully within the next couple of days.

Just a quick note on fluids. Some of us on diagnosis have very poor kidney function but our kidneys still pass significant amounts of urine (mostly water). This means it is both possible and advisable to flush the kidneys by drinking lots of water. However, when all the tubes (nephrons) are blocked the kidneys cannot get rid of the water and it builds up in the body. It is for this reason your mum is limited to 1 litre a day. More on this later.

Kind regards

Martin
PS My response will be too long to post here. If you can text me an email address to 07968483337 I will respond fully with my long-term renal strategy.

[rebeccaRParticipant]

Hi Martin, I hope you don't mind me asking but would love to hear more of how your kidneys have improved over time and what you did to assist this – I am new to myloema and have 15 – 17% kidney fuction after 4 months which the consultant says is all oermanent and won;t improve further so would like any information/strategy/glimmer of hope that disputes that they can't recover my e-mail address is rollinsonrebecca@gmail.com. Thank you for any help you can give me, Rebecca

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