Dear All
just wanted to ask if anyone has been /or is, on this trial?
As I'm relapsing, at my last appt with my consultant this week, he gave me 3 options to go for (lucky me!)
1). Straightforward velcade then 2nd SCT. 2). Myeloma X trial velcade then a 50% chance of either a 2nd SCT or maintenence therapy. Or, 3). MUK one trial Bendamustine, Dex and Thalidomide, and no SCT.
I asked my consultant which would be the best outcome-wise for me and he said that for my [i]particular[/i] disease (remember we are all different..!)any one was as good as the other.
I did not have complete remission with my first SCT, but with 2.5 yrs maintenance of Thalidomide and 2+ years after it was withdrawn, I've done bluddy well I think (pardon my geography). I just don't want to have another one just now. the MUK one trial seemed to be the one saying 'choose me'! It also appeals to me because as a trial,I feel as though I could be helping others as well. Call me weird…
So I've gone for it, and we'll see how we get on. I just wondered if any of you have any experience of Bendamustine at all. Kings told me that the most commom side effect is infection, so have to be careful who I kiss from now on (again) I guess ha ha.
Stay well everyone, and Tom – I hope you get to see some of that sun tomorrow even though you are at work8-)
Rosie
xx
Triglet 12 years, 5 months ago.