[bluelibranParticipant]

I was diagnosed with MS In 2014 so it was a big shock to be diagnosed with Myeloma in January 2017 at the age of 38.  Just a few months latter, it’s been discovered that I also have Myelodysplastic Syndromes (MDS).  You really couldn’t write this stuff!

I’m currently waiting for the MDS to be staged and a treatment plan.

Is anyone else out there also living with multiple conditions?  I’d really like to hear from any one dealing with MM and MDS.  I understand that this is very rare, but I’m at a loss.

[susantrParticipant]

Hi Bluelibran,

I’m sorry to hear that you are having to deal with multiple diagnoses. I can’t help regarding your query as I have just the myeloma to deal with, but I wanted you to know that I hope things turn out well for you and I will say a prayer for you. Keep strong and stay positive.

Sue

[bluelibranParticipant]

Hi Sue

Thanks for getting back to me.  As I’m new to MM, it’s also good to hear from you.  Any advice you can give me is welcomed.

Simone

[susantrParticipant]

Hi Simone

I have just posted a new topic on secondary mgus which gives my history of mm. I was 51 when I was diagnosed and was told I had probably had it for at least 2 years. I went into renal failure, and 3 vertebra collapsed for which I had vertebaplasty. My back pain disappeared overnight with this procedure and it felt strong again. This disease is cruel in itself, but you are having to deal with so much more. I hope you have got good friends and family support, it makes all the difference. My advice would be to learn as much as you can about the disease, and pay no attention to the “old” articles on the Internet regarding survival. Remember you are an statistic of one. You’re an individual. There are so many treatments today for mm. Let’s hope and pray a cure can be found in our lifetime.

Sue x

[angieevangelouParticipant]

Hi

I got diagnosed with MS and MGUS (not active myeloma yet although high risk) both diagnosed six years ago then Chronic Pancreatitis and a blood clotting problem (had 3 arterial embolisms removed from arm 3 years ago) tachycardia plus psoriatic arthritis and raynauds disease most of my life.

Angelina

[Author]

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