[laura1989Participant]

Hiya,

My dad was diagnosed with Myeloma in about October last year. He was very lucky as it was thought to just be a tumour that was wrapped around his spine so they were about to operate when it was actually discovered that in his blood results he had myeloma also. He has just found out that he has been accepted for the stem cell transplant which is good. Does anyone know much about this as I am not so sure?

Thanks,

Laura

[jmsmythParticipant]

Hi Laura

You are in the right place. Sorry you had to join us but welcome. You will get lots of Info and support from the people on the site. My husband is in Hospital at the moment going through STC. There are lots of people on the forum who have had experience of this. Everyone's journey is different but come on and ask any questions. You can do a search on SCT or look for previous posts under the heading Treatment. MeganJane (Megan and Phil), Vikki and Colin and Ann (foxy555 Ann and Pete) are some of the people have posted recently on SCT that I found very helpful. Forgot – also PeterJames

As I say come I. Ask, rant and rave, we have all done it

My best to your dad
Love Jea x

[VickiParticipant]

Hi Laura,

As jean said, read Colin's sct….I am Vicki of Vicki and Colin 🙂

We had never heard of mm before diagnosis, but boy do we now! There's no getting away from it, it's hard sometimes and scary and it really makes you feel angry, cheated etc….however, the induction treatment prepares you for sct. Colin had quite a few infections but as I have said before, the medical teams are very competent and swift at dealing with it. The sct wasn't easy as Colin failed to gather enough stem cells on two occasions, before the third just got him the 2 million required (2.1) to be exact 🙂

We battled through, the support during sct is great so I would say its well worth it, Colin is just past 3 months post sct and whilst its slow recovery it is getting there, being patient is the key. It's always an individual decision but any questions please ask 🙂

Vicki and Colin x

[tomParticipant]

Hi Laura and Dad
Sorry you had to join but its best place to be if MM is involved Good People and Good advice to be had here 😀

Just a fast one I am now 57 and i had my SCT in December 2009 and am doing great and drug free 😀

Its an uphill fight some days when you go through the treatment but it is a Doable, a few blogs have been done so a look at those would throw some light on it for you.

How old is your Dad and his Name? and where will he be geting his treatment as some people might be getting treatment at same place and can give you more detailed info.

Good Luck to you all in this road to remission.

Tom Onwards and Upwards xxx

[adamsp41Participant]

Hi Laura…welcome to the forum…I had an SCT in Jan 2011 after 5 sessions of CRD and am in Stringent Complete Remission…what you will find is that everybody's journey with mm is different and especially SCT and treatment…some cope ok but others find it more difficult…if you are unsure about anything write your questions down as you go along and check with the consultant or myeloma nurse ( if your dept has one )on your next appointment and ask for all associated leaflets dealing with SCT..if not ask the team on this website…they are really helpful…good luck heading for remission…stay safe…Phil

[laura1989Participant]

Hi Guys 🙂

Im soooo happy i have replies! I was so nervous when I joined as didnt really know if i would get any or what to say!

My dad's name is colin and he is 54. He is with Kings Lynn hospital in Hunstanton Norfolk but there macmillian centre there is actualy run by Camberidge Addenbrookes! So his case is actually run by them! He got a phone call today to say he has a meeting with the consultant on the 28th and that they will need to do an evaluation to see if he will be able to cope with it mentally as well as physically as he will be in the hospital for a while.

Im a bit nervous but i think its due to the fact that im still unsure on how it works but i know they will explain this on the 28th.

Yeah vicki i had never heard of Myeloma either but certainly know some things about it now!

I guess its all a bit overwhelming and stressful due to not knowing what the outcome etc will be, but you have all been so lovely and its nice to know that I can talk to others that are going through the same situation.

Hope your all ok,

Laura

[teds31Participant]

Hi Laura, Just to say if you want info sheets to help understand things or to show to other people and relitives, you can click on the Myeloma UK publictions at the top of this page and select the info you need then print it off. Hope that helps. Take care. Ted

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