Myeloma UK Stem Cell Transplant Survey

This topic contains 7 replies, has 5 voices, and was last updated by  sarajmorgan 10 years, 7 months ago.

Viewing 8 posts - 1 through 8 (of 8 total)
  • Author
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  • #102632

    sarajmorgan
    Participant

    Dear All

    My name is Sara and I work for Myeloma UK. For the next four weeks, we are conducting an online survey into patient experiences of autologous stem cell transplant and I would be very grateful if anyone who has had a transplant in the last couple of years could complete it for us.

    The survey will help us to find out valuable information about the needs, expectations and concerns of patients, before, during and after their transplant, as well understanding more about the information and support they receive. The responses we collect will be used to improve the information provided to myeloma patients and to highlight ways in which healthcare professionals can improve the support they offer to patients who are undergoing a transplant.

    The survey should take between 20 – 30 minutes to complete and responses will remain completely anonymous. To take part in the survey, cut and paste to open the following link: http://www.surveymonkey.com/s/stemcelltransplant

    Thank you in advance for taking the time to answer these important questions. We are very grateful for your help.

    Sara

    #102633

    tonyf
    Participant

    Hi Sara, is this the same survey that was mailed out a few weeks ago? If so I've done it.
    Regards Tony F

    #102634

    Michele
    Participant

    Hi Tony

    No, it's not the same one. I was sent the one in the post too.
    This one focuses in on SCT and seems to ask very good questions.

    Michele

    #102635

    tom
    Participant

    Hi Sara

    I done one but my SCT was in 2009 ??

    Regards
    Tom Onwards and upwards x

    #102636

    sarajmorgan
    Participant

    Hi Tom, thats fine, the main reason for asking for patients who have had their transplant in the last couple of years is to ensure they can remember the details. But if you have a good recollection of it then its its great if you could complete the survey. Sara

    #102637

    tom
    Participant

    Hi Sara
    All done and Dusted I don't hang about He he

    Regards
    Tom Onwards and Upwards x

    #102638

    ellen
    Moderator

    We have had an amazing response to this, but it would be great if we could just get a few more responses.

    So BUMP.

    Ellen

    #114111

    sarajmorgan
    Participant

    Dear All,

    Thank you to all those who participated in the online Stem Cell Transplant survey conducted by Myeloma UK last year. We have now produced a report outlining the key findings and recommendations, which can be accessed at the following weblink: http://www.myeloma.org.uk/news/enhancing-the-patient-experience-a-new-report/

    Thanks again for participating and making this project possible.

    Kind regards

    Sara

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