[AMorgan123Participant]

Good morning

Is anyone on the Myeloma XI Trial ?

My husband Bob (58) is on the 9th week (3rd cycle) of this trial and I'd like to touch base with other patients and carers to compare notes and share experiences.

He's being treated at Good Hope Hospital, near Birmingham, and I understand this trial is also running at Heartlands.

It would really be good to hear from you.

Amanda.

[Pickle2024Participant]

Hi Amanda,

My dad is on the X1 trial and has just completed 6 months of CTD and a course of radiotherapy and now just has 4 weekly zometa infusions. Its been a tough uphill struggle but hes just starting to feel a bit better…..it seemed impossible from where he was 7 months ago!! Its horrible seeing them go through the treatment but it will be worth it in the end

Nicola xx

[tomParticipant]

Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and I was a young 53 years young 😎

Good Luck to you both

Love Tom "Onwards and Upwards" xxx

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