[BlingyParticipant]

Hi,
My father in law was diagnosed with Myeloma last week. He is 72, and was always fit and well until about 6 months ago. Unfortunately, as a family we haven't been able to see the doctors yet and we have so much to ask as we are quite confused about his diagnosis and how he will be treated. He has started on some steroids but no other drugs have been given yet. We have had some leaflets about Myeloma, and some of the drugs but we are all finding it difficult to piece it all together.
Hopefully we will see the doctors today or tomorrow and we were hoping that the people in the community on here may be able to help with suggesting what we should ask the doctors. We do have a list of questions, but it would be great to hear from people who have 'been there' and know with hindsight maybe what the right questions are?
Thank You!
B

[kaychappersParticipant]

Hi sorry you have to come onto the site. It really is a blow and total disbelief when you are told that you or someone you love have this disease. I was extremely healthy when they picked it up and only had tiredness. I would only suggest that when you see the doctors you have a pen and paper with you and way up the options that you are given.This is a very individual disease with very individual treatment plans. Once they have suggested the coure of action for your dad, everyone here has either been through it or is going through it, so you will get lots of help and support. We are all ages. All I can say is that they are making leaps and bounds with this disease. Positiveness towards it is paramount. I wish you and your dad all the best. Keep in touch and let us know what the doctors say. Kay

[tomParticipant]

Hi Joanne

I also am sorry you have had to joint this site, but trust me its the best place for help/advice and folk to listen to us when we need a rant.
As Kay says its an individual illness and not one thing suits another.
Take the pen and Paper and make notes its not going to be easy to remember everything, also ask the Consultant to send you a copy of the report that he send to your Dad's Dr then you can sit down and study it.

Good Luck to you and your Dad

Love Tom "Onwards and Upwards" xx

[BADGERParticipant]

Hi
sorry you have to join this site but myeloma uk is the very best place to go for information I agree with Kay take a pen and pad and write down all the questions you want to ask you will always forget to ask something if you dont then always write down the answers so you remember when you get home
Love Jo

[BlingyParticipant]

Hi All,
Many thanks for the responses. We did write down all our questions and took a pad with us to write down all the information. There is a lot to process at the moment and I think that we are still very much trying to come to terms with what this will mean for my father in law.
He is going to his first clinic next week, when drug treatment will start. Any advice that you have about coping with treatment would be great. Also, we are very very concerned about my Mum in law whom has taken this diagnosis very badly and is struggling to cope, and we aren't sure what help is available for her,
Thanks!
B

[tomParticipant]

Hi Joanne

Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D

Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest also.

Good Luck to your Father in law in his treatment 🙂

Love
Tom "Onwards and Upwards" xxxxx

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