[daveoParticipant]

Mavis
Thanks for your reply.
As I have been well for 5 years following a SCT this is now new to me and I am really going to do what the specialist tells me. It is only now that I have been reading fellow sufferers logs and finding out what they have done and how they have coped. A lot of these have been very helpful and are helping me deal with the situation.
I am having a second blood test at the end of March to see what my pp level is. Before being diagnosed with MM I had MGUS for 12 years when my PP level stayed very low. I am hoping that it will stay low now for quite a while. The specialist told me he would not do anything if it stayed under 30.
I am just considering all my options incase the worst happens. I want to continue to try and live as normal a life as possible and whatever treatment does this for me is the way I will go. A SCT took 6 months for me to get over but it worked well and I would do it again if I had to.

I do not know how the other treatments work. Do they reduce the pp level?
Does it go back to zero so that you are in total remission? Or does it just control it at the level you are?
I know these are all questions I must ask the specialist when I see him next.
If you have any comments it will be great to hear from you or anybody else.
Thanks
Dave

[daveoParticipant]

Eve
I am hoping it is a blip but I will know in 6 weeks. I did have a sore throat at the time of the blood test. You never know.
Thanks for your reply
Dave

[daveoParticipant]

Alan
I had to have 2 tries and after the 2nd I had enough to store away for a second SCT if needed.
Hope you get enough next time
Dave

[daveoParticipant]

Thanks Carol
It helps to hear from others and to know that they are going through or have gone through the same sort of situations
Dave

[mhnevillParticipant]

Hi Dave

Interested by your reply. Someone else on the site said their Consultant said PP of 30 before any treatment, if no other problems with blood and kidneys, but when I asked my Consultant, she said she'd rather go by how the PP was rising, i.e. whether steeply or slowly.

Aim of all other treatments is to get PP down to zero for full remission, but some folk seem to cope very well with a partial remission.

Hope your PP levels keep low for many years. It's what I wish for myself.

All best wishes.

Mavis

[AlanGoldstoneParticipant]

Thank you

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