[peteParticipant]

Hi my name is pete I have myeloma  I live in london aiamiam  married with 3children and 12 grandkidsiamma very keen carp angler aswell  how many others carp fish on here if any

[nippyParticipant]

Welcome.. I don’t fish but have three aquariums lol. Sorry to hear u have myloma.  My sis was diagnosed six weeks ago.  How r u?

[peteParticipant]

I’m ok I think iam still trying to get my h round it but it’s so hard

[nippyParticipant]

What’s have they said yo you.  Give me a little info if you would?

[peteParticipant]

I have myeloma stage one iamlike your self I don’t know much about it that is why I joined this group

[nippyParticipant]

1. Well dont Google anything .  Join myloma sites. Speak to doc and leave it with that.  Google gives u answers and can scare u.  X stage one obviously is the best stage and has the best outcomes bud.  You will be fitting fit in no time x

[dazzParticipant]

HI Pete my name is Daz just read your post and like you I’m new and learning, I agree with nippy, it can be overwhelming to take in so go with the flow and don’t listen to much to google, I thk this site would be more valuable, and I fish…badly thgh but hope to have more time to practice 😊

[annlynnParticipant]

hy to the new members of the group no one really wants to be in . i was diagnosed in jan 2014. swiftly put on to cdt for six treatments followed by stem cell transplant in the Freeman hospital newcastle. quite a scary time but got through it like so many others on this forum. im in remmision almost two year and doing ok you ask if life drastically changes ?? it does change and priorities change but with a positive attitude and alot of love and support you will cope love. ann

[peteParticipant]

hi daz

This is petes wife he is fishing atm and rang and asked me to tell you he will chat when he is back tomorrow as he cant get on site where he is

[yorkyParticipant]

<p style=”text-align: center;”>Hi I’m k and I am a newbie,I have stage three myeloma and am falling to pieces because of this disease .I cannot weight bear on my right side because of the lesions ,I could have been diagnosed earlier if my ,young,Dr had not kept telling me it’s a muscle strain and myself being so stoic .i thought when the Dr rang and said I had kidney failure that at last I will not be in pain. No such luck , since November last year I have nearly died of the flu and pneumonia and a bad asthma attack,I have bad bone pain in my femur and pelvis.i am in a hospice getting spoils as I right, they are so compassionate and caring . I come from a small East Yorkshire seaside town and the hospice is 35 miles away. The visiting hours are open so that’s great to.i would love some feedback and sharing.</p>

[nippyParticipant]

Omg mate.  The same thi g happened to my sister. For six months she was told it was a bad back muscular  they said. She said no its not I know my own body x they did some tests but never checked her proteins… She complained and I said sue them. They replied and said sorry but we did the tests that were needed..  Erm no u didn’t. Now she’s getting second lot of chemo from today.  It so frustrating.  She needs some financial compensation to help her now she has had to stop work….  .  Have u started your chemo  mate?

[dazzParticipant]

Hi Ann

I thk you are exactly right and pleased you are doing well in remission, gives a positive attitude out there 😊

[annlynnParticipant]

sorry to join your thread here but im not sure if you realize that Myeloma is difficult to diagnose we are nearly all in a position were nback pain was a major problem before we were officialy diagnosed . it is no ones fault and tgere iz no point talking about sueing anyone. you will find during this journey you will be very gratefull to the NHS the doctors the specialists ect. please remember this . it is unfortunate that we are diagnosed often after damage is done i realse this. ann

[nippyParticipant]

Sadly I can’t agree… It was missed.  Test were not done.  Sis can’t work.  How is the morgage to be paid???  They won’t pay put until the docs tell her a date she will die…  Shocking. The docs she has now are amazing. The nhs is insured they don’t actually pay out.. It would be nice to get some payment now sis can’t work

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