Hi Christine,
Sorry about your news. Myeloma patients all seem to be so different so it’s hard to know the speed at which things develop. I was diagnosed in August 2013 with free light chain myeloma, but told the month before I definitely didn’t have myeloma! Think it can take a while until they know what to look for.
Anyhow, about the bone marrow biopsy: I’ve had quite a few, about 8, as I took part in a trial which meant for me many more than usual. I’ve had them with and without sedation no bother, but 1 bad experience without and I now make sure I get it all the time. It takes a bit of coordinating booking in an anaesthetist, so I would recommend you call today and tell them how you are feeling. Ask for a myeloma specialist nurse or similar as they should help. Your aren’t necessarily a wimp as it is understandable that you are nervous. That way you will worry less which will help.
Whatever the outcome and assuming you will have hospital consultations, make sure and have someone with you, especially at the early ones. They can take notes as so much information is passed between you and your consultant, and they can ask questions too. Ask all your questions, big and small. And I’d highly recommend attending a myeloma UK info day – if this is the case. I’ve been to a couple of different ones, and highly recommend the London one that usually takes place this month. Although I’m sure there are other good locations too.
Hopefully you will get good clear news afterwards. Best wishes to you,
Jan
