Hello all,
Been a while since I have been on, Etta checks the forum more than I do now (she's pinched my iPad off me too!) but she's still a bit shy about posting I think. 🙂
Just to give folks an update. She has been off her chemo now for a month with her levels at 22 ( I presume this is her para proteins?). Just had another bone marrow test and the doc has said he is going to send her for SCT at Blackpool, so we are waiting for the appointment to appear, the specialist nurse seems to think sooner rather than later.
A little apprehensive about it but I guess we will know more when we have the meeting what to expect. We asked about travelling too as she wants to go see the girls in Oz at the end of the year, he said he had no problems about her travelling so that's good. Hopefully the SCT won't hinder us too much, I know it can knock you back a bit though so fingers crossed.
Generally though Etta is doing well. She's getting her sense of humour back, is managing to potter about a bit indoors with her frame and keeps trying to push herself to do the things she used to (to which I keep telling her off). Getting out and about as often as we can in the chair, the blue badge has been very helpful with that.
Finally heard from the benefits lot, they awarded her some money and even back dated it to October so that's one less worry now I suppose. Had to do some big shops for clothes for her, she dropped about 3 sizes so has been happily buying new outfits and directing me to clear out of the wardrobes!
Anyway, she's waking up after having a lazy Sunday morning, so off to make her some dinner.
Will try and persuade her to "talk" herself 🙂
Craig
