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This topic contains 49 replies, has 15 voices, and was last updated by  petesilver 11 years, 7 months ago.

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  • 5th April 2013 at 10:48 am #87335

    petesilver
    Participant

    Hello Jane
    Sorry to hear your news, always say is to try and remain positive, I was diagnosed in 2004 and all the doom and gloom people thought that was it, but here I am 9 years on, had all the usual treatments and currently relapsed and waiting to see what the next treatment will be on Tuesday, but I still feel OK.
    I hope all you treatments go well..
    Pete

    5th April 2013 at 8:22 pm #87336

    feaseyjane
    Participant

    Hi Peter
    Thankyou for your reply.

    Good luck for Tuesday
    It's good to hear positive comments
    I was told 5 to 7 years life expectancy
    Does that mean overall with treatment ,who knows.
    Well have to think one day at a time
    Please keep in touch
    Will be thinking of you with everything crossed for Tuesday

    Jane xxxx:-)

    5th April 2013 at 11:59 pm #87337

    Anonymous

    Hello jane
    My husband henry as diagnosed with mm in August 2011 he had 6 cycles of CDT then a SCT at Churchill hospital in Oxford in march 2012. He is now in remission. We live in Milton Keynes. He is doing very well and went back to full time work in June last year. He has had a few chest infections and does get very tired but he manages it all v well and is so strong and positive. I wish you well in your treatment and make sure you drink plenty of water and rest 🙂
    Regards sarah xxx

    10th April 2013 at 9:33 pm #87339

    petesilver
    Participant

    Hello Jane
    Had my appointment on Tuesday well it was all good news as the CT scan results were not showing any problems ( much to my surprise)and as all my blood results are holding up fine (maybe except platelets but they are not to bad) my consultant has decided that there is no need to continue the maintenance dose of Revlimid as he said the jury is still out on this treatment anyway.
    I took Revlimid for five months and my PP came right down, and he feels we will keep this in hand should any problem arise again instead of keep taking it.
    So here is a happy chappy and at the moment free of any Chemo & RT now ready for that holiday I have kept putting off.
    Regards
    Pete

    13th April 2013 at 6:34 pm #87338

    feaseyjane
    Participant

    Hi Sarah

    Thanks for your lovely message
    What great news about Henry full remission.
    I bet you are both thrilled

    Slowly getting on with my treatment
    It has only been nearly 2 weeks so early days

    Please keep in touch

    Happy for both of you

    Jane xxxx:-)

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