[Gill20Participant]

Hi All,

My name is Gill and I am 59, well I am for the next 2 weeks anyway. After 17 years with MGUS I have just been diagnosed with myeloma, I just can't believe it. There seems to be an awful lot to take in, I suppose I am lucky as I have been screened regularly it was picked up fairly eary. My only symptoms are tiredness and back ache. I have an appointment tomorrow for my skeletal survey and an appointment with the doctor to arrange treatment I am going on the Myeloma X1 trial. I am hoping that I can celebrate my 60th birthday before treatment starts.

Gill

[eveParticipant]

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right direction,except for a few hiccups along the way.:-( Have agood birthday,enjoy a drink,you might just go off it,once you start treatment,my husband doesn.t enjoy any drink now,he dreams of enjoying a good bottle of wine again.:-P
best wishes eve

[tomParticipant]

Hi Gill

First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.

But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still cant do what I used to do before I had MM but have learnt to slow down a bit, and at the moment just get weary more often but thats my bloods :-S
Good Luck on the trail am sure it will ruin smooth 😎

And now as for the demon drink?? I think Eve might be correct as I have gotton myself in some states what with the Vodka/wine and cucumbers:-P so take if want to and leave it if you dont, please dont say "Tom says its Ok" ha ha.

Keep us posted and I wish you a speedy Remission8-)
Have a great Birthday

Tom "Onwards and Upwards" xxx

[eveParticipant]

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

[BADGERParticipant]

Hello Gill
welcome to this site not the words you would want to hear, You will find many friends and a wealth of good information and support go ahead have a good drink for your birthday and why not I was diagnose in jan 2009 I was 61 I have been in plateau since may 2009 no SCT due to major kidney damage
GOOD LUCK 😉
Love Jo

[BADGERParticipant]

Tom what is it with you and cucumbers, I like them in a good strong glass of Pymms:-P 😎 😉 Love Jox

[tomParticipant]

Hi Eve and Jo

Well the Cucumbers are allegedly good for Cancer sufferers, and a few of us here have sat in a "Cyber" greenhouse drinking Red wine and eating cucumbers8-) Hope that clears that one up and you now know am normal (yep normal even in a Cyber greenhouse ha ha)

Love from One cucumered

Tom "Onwards and Upwards" xxx

[brochoParticipant]

Hi Gill welcome to our merry band of slightly crazy but wonderful people ( cucumbers are a good example!!tee-hee) Actually I thought I replied to your post yesterday , either I was dreaming or the gremlins have pinched it It is very confusing when you first start on treatment but it will soon settle down as you get to understand all the new words Its great they caught you early and you havent got too many symptoms , tiredness is something we all have to a certain degree , I can cat-nap for England !! When is your birthday? I am sure you will have a good one treatment or not My only advice on your starting your myeloma journey is take things a day at a time , today might be rubbish but tomorrow could be great Best wishes Bridget x

[zasrsParticipant]

well i never knew cucumbers were so healthy! how are yours tom? mine are great never had red wine and cue's together, nice glass of rose will do the trick hopefully.

😀

[Gill20Participant]

Thank you all for your replies, I will have to try the cucumbers Tom!!! Unfortunately I went to the hospital for my skeletal survey this morning hoping to be back at work at lunchtime. I didn't make it home till this evening after having Zometa and a chat with the doctor who said he wants me to start treatment tomorrow si I am back again in the morning. He said it wasn't wise to wait so I am now on the trial on CDT1 or will be in the morning. It has been a rollercoaster of a couple of weeks.

Oh Bridget, there was another new Gill who posted and you replied to her. It must get very confusing with all us Gills about.

Thank you once again

Gill

[tomParticipant]

Hi All

Just to let you know I only eat Cucumbers in our Cyber greenhouse, I cant stand the things ha ha.

But the Red wine now thats another story oh and the Vodka I was given a bottle of Vodka with lime, just tasting it tonight and its very nice and refreshing (and i aint in my Cyber greenhouse)

Hope you all have a great Week End 😀

My Young Bride (elaine) and I will be looking after two/three or four grandkids on sat nite8-) cant wait he he.

Tom "Onwards and Upwards" xxxx

[Author]

Posts