It may seem strange that I’m here when I haven’t beeen diagnosed with MM. However, feeling ill with diverse symptoms, done a lot of ‘reserach’ and would love to hear some opinions and experiences from people who have MM.
A brief (very brief) history. Breast cancer 2011. Lumpectomy followed by radiation and meds. Thyroid Cancer diagnosed ‘incidentally’ during CT scan. Thyroidectomy 2012 followed by radioactive iodine treatment. Took some time to get thyroid replacement sorted but now as good as it gets. Also Osteoporosis diagnosis.
In 2014, started to feel very tired, painful hips, headaches. Because of my history, scans and blood tests done. No prob. These symptoms have worsened over two to three years. Dx Depression, fibro. Onc not convinced but couldn’t find anything.
Last 6 months have been hell – a real deterioration in above symptoms. Due for a total knee replacement in a few weeks. Lower back and hips severe pain suddenly developed – also occuring in shoulders and neck. Orthopaedic surgeon checked hips three weeks ago and said pain coming from back. MRI of lumbar and sacral spine next week.
In last two months, burning pains in arms, legs and feet have been a new thing and very distressing – especially at night. Feel as though someone has poured scalding water over me. Also hot burning flushes all over body in day. Feel like rolling in snow. Lol
Blood tests – many and often. Done by different professionals so no one seems to have real big picture. Last three lots of tests have shown nothing of much significance except rbc, hbc, mch at bottom of range with haematocrit just below range – but ferritin at very top of range. Consultant who did these said I was borderline anaemic but not iron anaemic. No further comment. Also my ESR has been slowly rising and is now 68. Bone profile done. All ok.
I have done some research into this anaemia issue and am concerned at what I read about low red blood cells and high ferritin.
The very worst experience in all this is one that doesn’t happen often (about once every couple of weeks) but is terrifying when it does. I’m usually standing when it happens. Exisiting pain intensifies suddenly to very severe level, feel as though I’ve been hit with a baseball bat over my neck, get very hot and bad headache and weakness begins.
I’m going to shut up now. Well done if you’ve read this far without dying of boredom 🙂
Any insights would be greatly appreciated. I can’t carry on like this x