[OutdoorsPaulParticipant]

Hello all
Just seen my consultant today who told me that I am in partial remission and expect to be in complete remission in December when i see her next and my levels are down to 3.5.So it seems my SCT is being planned for Jan/Feb 2012 at St James Leeds (jimmy's).SO just want to say "thank you" to all on the site who have helped me with those early questions being a "young-un" and if I can help just drop me an e-mail.I am sure I will be seeking advice again soon!
Big smiles8-) Paul

[HelenParticipant]

Hi Paul
It's so good to get good news, makes the journey that bit easier.
Chin up got to be in peak condition for the sct.
Ps used to work at jimmy's on one of the orthopaedic wards, back in the 80's, lovely place, met my husband there.
Helen

[DaiCroParticipant]

Hi Paul,

Great news that your CDT treatment has done its job, great news indeed. 😎 😀

I had my CDT treatments over the summer of '09 and after a hitch or two I had my SCT in March '10. The hitches prevented a pre-Xmas SCT (I would have been due out on or around the 20th December)… which meant I was in remission for the Xmas holidays… and I thoroughly enjoyed every minute.

I was in good health for Xmas '10 and I am in remission for Xmas '11… bliss. The times in between have been… interesting… but Xmas's have come good. 🙂

[b]Prescription:[/b] Enjoy yourself enormously over the whole of the festive season, try your hardest to put the damned disease to the back of your mind and only turn your thoughts towards your SCT on the 2nd of January… and not a moment before. 😎 😎 😎

[b]Doctor Da[/b]i.

[OutdoorsPaulParticipant]

😀 Hello Dr Dai
I will follow your prescription to the letter for Xmas/new years 2011!,we have booked a cottage in highland Perthshire for new years and seemed to have dropped lucky as my consultant says she is happy for me to come off meds on December 12th.So we have the opportunity for a little shin dig over festive season.Glad to here about your remission in 2010/2011 Xmas times.
cheers Paul

[eveParticipant]

Hi Paul
You must be so pleased,start 2012 on a high.Good luck with ever thing and let us know how you get on,we need lots of good news for people coming after you.
Pennine Way or Three peaks next.Love Eve

[OutdoorsPaulParticipant]

Hi Eve
How did you guess? yes I am thinking about a long distance walk maybe West Highland way about 95 miles next summer(can do that in 2 weeks things permitting). We did wainwrights Coast to Coast 2 years ago fantastic scenery and a really good social holiday with other walkers.
Thanks for the e-mail support always appreciated and I always tell Rachel my wife when i get e-mails.
You and Slim take care

*****[b]Helen[/b] nice to here a good news story from Jimmy's especially a match making one!
cheers Paul

[eveParticipant]

Hi Paul
Believe it or not in my miss spent youth as a scouser I spent a lot of time,walking hiking and climbing the only way to meet fit male bodies.
Live in the south now more sedate,nearest I get is the white cliffs of Dover,or the Saxon way but still very beautiful.

My Son-in-law Rob is the walker for charity and pleasure,did the three peaks in 24 hrs!!! with like minded people and raised over £6000 for childrens respite in Kent,I take it easier and go in a motor home, lol

Slims big thing was marathons,A marine for 24 years built like a whippet,feels very confined if indoors,

You are on your way to SCT make sure you look after yourself,and this time next year it will just seem like a bad dream Love Eve

[OutdoorsPaulParticipant]

Hi Eve
Motorholme sounds good idea!!and will also keep that in mind should a "gremlin appear" durring SCT. Slim sounds like he was a fit lad and I am sure this helps him at times.I am in a local mountain rescue team but just had to tone things down while going through treatment.I would agree its not that easy to be confined to quarters when needing rest.
take care Paul

[DaiCroParticipant]

Hi Paul,

I make a point of trying very hard not to long for past abilities… my bone damage and PN limit my mobility although I walk unaided and generally 'look the part'… I accept and I am grateful for this existence and treat it as phase 2 of living.

Saying that I can quite happily reminisce about happy times and achievements in or from phase 1… without wishing for it or regretting its passing. I am 57, with a current target/goal of reaching 60… if I get there then I will set the next target/goal etcetera. It works for me. 🙂

I played Hockey for 18 years and enjoyed it immensely… it just happened to be the sport which suited my talents the best, although I would gladly have swapped it for rugby or football if my skills were transferrable. During that phase I also enjoyed walking and hiking… a habit picked up from my local Boy's Brigade unit which specialised in outdoor pursuits for the Duke Of Edinburgh's Award Scheme. I got my silver but life, music and girls intervened and I got too old to try for the gold. Still, I managed about 4 or 5 good hikes a year, mainly on or about the Pennine Way during my 20's and early 30's but from the age of 15 to 20 I virtually lived in Edale, spending every other week-end there, walking, camping and enjoying the delights of the Nag's Head… where I was introduced to Folk Music which, amongst other genres, has remained a lifelong passion. A good folk singalong after a day's hiking, accompanied by 2 or 3 pints of real ale in the pub was, for me, at that particular time, as good as it got… a truly immeasurable pleasure.

There was a group of 5/7 of us, all garnered from that BB unit, that hiked parts of the Pennine Way and most of the Lake District (including a 2 week camp at Sedbergh, North Yorkshire, which the BB unit still attend each year). Our best achievement… and I have to admit the least enjoyable, was doing the 3 peaks… Ben Nevis, Scafell Pike & Snowdon, over one long weekend… starting out from Mansfield, Notts early on Friday morning and ending on the top of Snowdon at 8pm on the Sunday evening… we all missed work the next day. We had 2 non-walking drivers and a 17 seater mini-bus with 6 walkers, myself included… It was a gruelling yomp and it put me off hiking for a good 6 months or more… but we did it. 🙂

These day I get the same sort of elation when I manage a day out shopping in Nottingham followed by the cinema and supper… expending the same amount of energy and the same amount of tiredness at the end of the trip… but far more enjoyable. 😎

Enjoy the holiday and look forward to completing your SCT and the sense of freedom to plan ahead as you recover. 🙂

Dai.

[OutdoorsPaulParticipant]

Hi Dai
Sounds like you done lots of walking and gained those trophy blisters en route!so i think you are now aloud to"look the part" you have earned it i think.And yes a pint a pub at the end of a walk is spot on no matter how long it is especially if folk music or a ceilidh band is on. cheers paul:-)

[zasrsParticipant]

Hi Paul
Have a wonderful festive season, enjoy every minute!! And next year do the same, with a sct so early in the new year you will be up for partying next christmas!

best wishes sarah

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