[Georgie87Participant]

Hi all,

My dad has MM and has just started his 5th cycle of CTD. He is in so much pain in his hip (area most affected) we are at a loss of what to do. He has radiotherapy (about 10 weeks ago) which didn't improve the situation at all. He is taking tablet form morphine as well as paracetamol and oramorpth as and when. He has a bone infusion once every 4 weeks too. We really expected that his pain would have improved a bit by now but if anything it is worse than ever. His consultant just tells us to increase the morphine but my dad doesn't want to feel out of it all day long. Surely there is something else, no?

Thanks in advance for all your responses.

Georgina

[sanParticipant]

Georgina, your Dad needs to discuss the pain with his palliative care nurse, she can help with a drug regime which should get Dad pain free quickly, my Mum takes Oxynorm syrup just 1.25mg 5 times a day and her hip pain is now very manageable , hope that he feels better soon, take care San x

[eveParticipant]

Hi Georgina

I would take the consultants advice and up the morphine,is he on a Slow release like Oxycodone,also paracetamol. Will enhance the Oxycodone, it takes awhile for the body to get use to these tablets,but if he is not on slow release,he will feel sleepy,slow release is a 12hour drug,so taken at 10 in morning and 10 at night helps.

If you cannot get hold of consultant see your GP. As consultants may not be the best person to help you manage the drugs and your surgery might be better situated with management of pain releave.

Myeloma effects the bones causing stress on Skelton,radiotherapy is either for pain management,or the danger of bones breaking,if you can not get an MRI scan,why not try for an ordinary exRay,which your own doctor can arrange,just in case the bone has been so weakened it might be collapsing.
If its just Myeloma pain the chemo regime,will make the pain easier in time as chemo works.,hope this gives you some help,you could ring the Myeloma help line and speak to Ellen or Maggi,by going direct,you can explain easier about it. Eve

[mhnevillParticipant]

Hi Georgina

As your Dad's pain is mainly in his hips are they sure it is all myeloma pain? Has he had any arthritis? I found all the pain wasn't controlled by morphine etc when my pain nurse said I probably needed to also get back on anti-inflamatories. I di, eventually could come off the Oxycodine and have been much better. Stiil pain but manageable. I know they aren't keen on anti-inflamatories because of the kidneys, but in the end I decided I needed some quality of life now. As it happens, so far, my kidney function hasn't worsened.

Best wishes to your Dad.

Mavis

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