Hello everyone
My first time posting.
My Dad got diagnosed with myeloma in January and started on the radar Trial. He’s now up to his 100 days post transplant and we are waiting on results of his bone marrow to discover what’s next.
Just wondering if there are any other people on this radar journey who can share what the maintenance regime is like please?
So far, he has responded really well and he is now back to doing his normally fault routines – golf and spending time with his grandson.
I’m just a bit nervous with what is to come. My Mum also had myeloma. She had a pretty rough ride after transplant as her myeloma came back within 6 months. I know everyone’s journey is difficult but sometimes it is hard not to compare especially when you’ve already lived that life with a parent with myeloma. Their diagnosis journey was different, Dad was diagnosed very early with hardly any symptoms and my Mum was extremely poorly by the time she was diagnosed. Then she fractured her femur and her mobility deteriorated. Their treatment journey has been very similar – induction drugs and then stem cell transplant. Mum didn’t go on a trial when she was diagnosed and there was no maintenance treatment either. My Mum died in February 2021.
I’m just hoping that my Dad continues to have the quality of life as life got extremely hard for my Mum especially after she broke her femur.
Thanks for taking the time to read.
Emma
