[DaiCroParticipant]

Hi Craig,

I have been giving it a lot of thought and, barring any last minute glitches or health hitches, I would like to attend your conference.

I will be canvassing opinion from this forum to ensure that my contribution is a reflection of a broad spectrum of experiences, needs and desires.

I will await any instructions etcetera, etcetera.

Dai Crowther.

[eveParticipant]

Good for you Dai you have my vote love Eve

[DaiCroParticipant]

Hi Eve,

I'm willing to go (if Craig hasn't either given up or found someone else) because I realised that my reason for not just saying 'Yes' in the first place was a negative act. I was saying 'maybe' just in case I am either ill or feeling the side-effects of my last cycle (the conference falls at the end of my final rest period) but that is a poor stance to take and I have got to believe that I will be fine by then.

It is so easy to fall into the role victim of the disease and its treatments and I have always told myself that I would not allow that to happen… so, I will attend, if I am still wanted, and if it is confirmed I will ask for guidance and start generating discussion and debate on this forum in order to get a holistic approach to the wants and needs of Myeloma patients and their partners and carers in the processes and procedures carried out by the labs and technicians.

Dai.

[eveParticipant]

Hi Dai
I do see were you are coming from,but we do need a spokesman or woman,who can explain the way we see things.Have you e mailed him.
If you are coming to the end of treatment,may be they can give you extra dex and have a dexy day LOL
Glad to see you being positive remember you are living with cancer not dying with it,living in Deal in Kent is too far away other wise i would be there just to support you,but your Janet will do a good job.
Must go another marathon day at hospital!! best wishers Eve

[DaiCroParticipant]

Hi Eve,

I have emailed Craig and he has confirmed that he is happy for me to attend.

So… first spot after lunch:

[b]13.30 Multiple Myeloma ? A Patient Perspective[/b]

Which will be my perspective on how we can be helped on our path towards individualisation of treatments by laboratory and technical services – especially, or specifically, on how we can be proactive in the management of our treatments.

We will need guidance about the work of the labs – what they do, what they can offer and how we, as individuals patients, can influence the decision makers to best practice on our behalf.

Should be interesting. 😎 🙂

Dai.

[tomParticipant]

Well Done Dai, like all the others above I know you would be best for us all 😀 could I do it?? no to be fair I dont even know my levels am just happy if my Consultant is happy8-) am sure I should be taking a more interested bit to my treatment:-) but I am easily confused .com:-S so for me Dai I thank you for throwing yourself into it 😀 and am sure

And Eve am sure you have been told that you are very forward for such a young Lady Lol xx

Tom (and with the help of Dai) "Onwards and Upwards"

[eveParticipant]

No Tom have never been told that,I would hit them with my handbag if they
did:-P ,
Tom its just my personality,my sister says " I just tell it the way it is",as I have got older I do try to curb it because the last thing I would do is offend someone.It is also the fact that I am a scouser and they tend to be a bit abrasive.
So now you back i won,t make jokes about your cucumber!!!8-) s

[tomParticipant]

Hey Eve you can mention My Cucumber any time you want 🙂 and as curbing it I wouldn't want you to as am sure like me folk Love you the way you are 😀

Hugs

Tom "Onward and Upwards" xx

[teds31Participant]

This is an interesting topic I must keep an eye on it. I personally cant add much as I have not had any treatment at all, but it seems a good idea to be in touch with the lab people as they will be the people who can help in the future. Ted

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