[fard1983Participant]

Hi
My name is Mohammad.My mother has MM almost 2 years.She received 2 cyle of VTD(velcade +Thalidomide+ dexa) almost 2 mounth ago, then now she is suffering from peripheral neuropathy. she has very pain and also she medicated drugs ( gabapentin ,amitriptyline ,Cymbalta, alfenxl ) but those were not useful. please guide me .thanks

[tomParticipant]

Hi Mohammad

Sorry your Mum has got MM but a warm welcome to you both.

As for PN it is a side effect am afraid I suggest she talks to her Consultant they might reduce the drug dose that she is on and the sooner the better I think.

Tom Onwards and Upwards

[fard1983Participant]

Hi Tom
Thank you.
unfortunately in my country , IRAN , there are not good consultants for treatment of Peripheral Neuropathy, So I decide to find a way for my pain's mother in internet,
please if you can guid me.
your sincerely.

[TinaParticipant]

Hi Mohammed,

Sorry your mother is suffering with painful neuropathy. As Tom says it is a well known side effect and one that is difficult to treat successfully. Reducing your mothers drug dose is definately the recommended option especially as she is on both Velcade and thalidomide which both cause PN.

Sorry I cannot give you any more help.

Good Luck
Tina

[tomParticipant]

Hi Mohammad

The Consultant I mean is the one that is dealing with your Mum's Myeloma and or the nurse in his department.

I am sorry I cant add anything else Mohammad as am sure this should be left to your Mothers consultant.

Good Luck and give my regards to your Mother

Tom Onwards and Upwards

[clarabellParticipant]

Hi Mohammad,

My Dad also suffers with PN, there is info from a Professor on Myeloma Uk Tv (look at bottom of the page). Has your mum tried Capsaicin cream or Vicks on the soles of her feet? Capsaicin cream is only available on prescription here. Perhaps you could get this in Iran.

Best Wishes
Clara

[eveParticipant]

Hi Mohammad

My husbands Amitriptyine was increased from 5 m to 25 m.by consultant in Kings Hospital London for PN,see consultant!!!!

Also I used a coco based buttermilk cream which I massaged his feet and legs,I still do this as it helps circulation plus helps with dry skin.
Eve

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