Just a quick one, I lurk and read a lot on here – almost daily but don’t post too frequently, but we got good news today. Disease undetectable, complete response. No para protein, light chains doing whatever normal light chains should be doing.
As he only got 12 months after CDT and auto SCT and is so young and handsome (I may have made up that last bit) they’re going to carry on the velcade for the full allowable 8 cycles bug drop all other drugs and space it out to fortnightly as “ongoing treatment” to try to prolong the remission.
So 32 weeks, hopefully of some calm and minimal treatment till we reevaluate and decide whether to go straight to Revlimid or take a break. No doubt the 2 lots of docs will take opposing views, but we’re getting good at getting them to formulate a plan and present it to us.
The allo is still on the table, we’ve just pushed it a bit out of reach for a while as we’re not ready to take that step yet.
Thank you all, even when I’m not posting, knowing this is here if needed is a great support.
Fiona
