Hi Sarah,
I hope your hand is healing well?
Phil and I are doing well adjusting to our new normal. Phil has stayed infection free since he has come home and the fatigue is becoming less of a problem as the days pass. Phil still has pain in his ribs, back and legs but this is not as bad as it was last year. We are waiting for a consult with a surgeon about a kyphoplasty op which we hope will help the back pain. The pregabalin dose has been increased to 150mg twice a day and although the neuropathy is still there it is different now and not worse so maybe it will go eventually?
We know Phil's paraprotein has already dropped from 5 just before the transplant down to 3, the next test will be the 100 day assessment in April so we are hoping it will have dropped more by then 🙂
I hope Henry is doing well.
Megan
