Hi Jenny
You might struggle to find someone else with PCL here, it is much rarer than myeloma, and myeloma is a rare cancer. I think you’re the first person to mention it in these forums. Myeloma UK have published an Infosheet about it:
http://www.myeloma.org.uk/information/myeloma-uk-publications-list/other-related-conditions/plasma-cell-leukaemia/
There are some topics (threads) about PCL in the Myeloma Beacon forums in the US. You can find them by going into the forums here:
http://www.myelomabeacon.com/forum/
and typing ‘plasma cell leukemia’ in the search box near the top of the page. Note that a simple search just looks for the words in topic titles. Doing a search using the usual UK spelling ‘leukaemia’ finds a couple more results.
Alternatively, or in addition, you can do a site search using Google. Type the following into the Google search box:
“plasma cell leukemia” site:www.myelomabeacon.com
Putting a phrase in quotes forces the search to look for the phrase rather than the individual words. The alternate spelling provides a different set of results:
“plasma cell leukaemia” site:www.myelomabeacon.com
Take care, and good luck with your treatment.
Ian
