My superfit, marathon running son was diagnosed at 44 with Myeloma and following lots of Chemo and a stem cell transplant was in remission and just weeks away from a second transplant which was hoped would buy him maybe 6-8 years. He was so well you wouldn’t think anything was wrong. Then he started leg pain which he knew was not unusual but within days he woke with a headache, vomiting and paralysed from the waist down. At first nobody knew what it was but advanced tests over 3 days diagnosed Plasma Cell Meningitis. He was given 2-3 months at which point he had all treatment stopped and died 4 days later. His specialist said it was very rare and he had only ever seen one case in 20 years. It just came from nowhere and It is hard to find out much about it. There is nothing on the Myeloma site about it. All this took place over just a year and I feel so cheated on his and his little girls behalf. Has anyone any info about it.?
