[dengilbertParticipant]

Hi everyone my Husband is on Clinical Trial Myeloma X1 and on CDT has had really good results in first 2 months ie PP down from 37 to 9.7 now after month 3 seems to have Plateaued out it has stayed the same, the Consultant didn’t seem concerned but the Clinical trial Nurse did say they only let you Plateau twice !! then I suppose they have a re think on the regime?
Has anyone else had the same experience ? and if so what happened?
Maybe we are expecting too much too soon ? and have to be patient ? Thanks Denise x

[jeff605Participant]

Denise, Hi, I started on CDT, on trial X1, which did much the same as your husband, drastic reduction for a start, then plateaued. I then came off the trial, went onto Velcade which had a slight decrease in p/ps. I then if memory serves me, stopped every thing for a month. and was then put on Revlimid and Dex. This had a great result , on course no.6, and p/ps down to 4.2 the lowest yet. And that’s with some other quite serious set backs non Myeloma related. So don’t worry too much – easier said than done, I know – there’s plenty to go at yet. best wishes, Jeff

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