Hi.
I too recently had a SCT at Heartlands. Been out now about 4 weeks. Apart from the excellent care given, I must say that the isolation was the biggest problem for me. I was literally going stir crazy. Overall, it wasn’t too bad. I did get mild mouth infection, the sickness and diahorrea did kick in after about 3 days, and totally lost my appetite, but had to persevere with eating. Everything was slow to go down, equally everthing was slow to come back. It also took nearly two weeks for my hair to start to come out, which I had held on go through 7 cycles to CTD and 3 of velcade.
I was diagnosed with myeloma 8 years ago, during this time requiring no treatment, then last year the para protein started to go up and up every time I went. So they warned me that I would need some treatment. Started that April last year. The valcade has left me with the peripheral neuropathy especially in my feet. They have offered me some medication, but after reading the side affect, don’t really want to go down that path, although it is beginning to get me down now as I feel like I’m walking through jelly most of the time – it’s a strange feeling. If anyone has any tips about this or does take the medication they subscribe, I would be most grateful.
Good luck everyone.
