[kazza909Participant]

Hi , my Mum is currently in the beatson after having her stem cell transplant she is 5 days post transplant, she is really sick and nauseous, also tired, is this normal? How long will she feel sick for?

Thanks

[beetlejuice54321Participant]

Hi Kazza909

The symptoms you are describing are perfectly normal for a stem cell transplant. I had one just over 4 years ago and felt very ill for the first two weeks immediately after it. I had uncontrollably sickness and eventually had to have anti sickness drugs pumped directly into my bloodstream to stop the nausea.

But be reassured, I started to feel a lot better by about day 12 post transplant. I was then able to sit up and watch TV. Before then I was too unwell. Hopefully then your mum will be feeling a lot better in a weeks time.

Good luck.

[kazza909Participant]

Thank you , she is the same with the nausea got a line in yesterday, but she’s not interested in anything, doesn’t want to watch tv or really chat when we visit

[greg777Participant]

Hi Kazaa909

i would back up what beetlejuice said – it can be two to three weeks after SCT before the patient begins to feel better. I was pretty shattered all the way through and often it was a comfort to have loved ones there even if I didn’t really engage. I took books in with me but never read them. Things tend to turn when the blood counts come back, which as beetlejuice says is normally after a couple of weeks.

Wishing you and your Mum all the best,

Greg

[kazza909Participant]

Thank you Greg

[susantrParticipant]

Hi

I had a particularly torrid time when I had my sct. I was still vomiting after discharge (24 days) up until 8 weeks after transplant. When I left hospital I was too weak to walk and was wheeled around for 2 weeks. Unfortunately for me whilst I was vomited I burst blood vessels in my eyes and had a brain haemorrhage. As a result I have lost vision in one of my eyes. It’s a difficult process to go through, but hopefully your mum achieves a good response to treatment.

[kazza909Participant]

Sounds awful Susan, just horrible to watch, hopefully picks up soon, how long have you been in remission?

[susantrParticipant]

Hi

My 100 Day bone marrow showed that I was MRD -be, so I couldn’t have asked for a better result. That was in October 2016, so I hope and pray it will continue for a very very very long time.

[kazza909Participant]

Excellent news all the best for the future

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