[iangray67Participant]

Hi,
Anyone else on the Radar Trial ? I have recently been moved to four weekly maintenance treatment, which is a good thing, I think.
I have always tolerated the infusion of isatuximab really well, but the last three infusions have kind of landed heavy later in the same day as the infusion, tiredness feeling a little unwell nothing to concerned about currently

I was just wondering if anyone else has had the same experience.

Thank you
Ian

[gcParticipant]

Hi
I am on the Radar trial and have been on monthly maintenance since October (2025). I too have tolerated lenalidomide and isatixamub well until recently. I found that since October the side effects have gradually increased. I’m not sure but I think it coincided when they increased the rate of the isatixamub infusion.
However my bloods are still good and according to my consultant ” the myeloma markers are stable”. I’m in the high risk group so that’s all I need to know for now.
Last week I had an interim appointment with the day unit. The registrar sent off various samples and swabs to rule out underlying infections. They called yesterday and all ok. My consultant said he would discuss options with me when I have my regular treatment next week and ” there’s always something we can do.”
I feel reassured by the team at the hospital who are always available.
At the moment my inclination is to stick with the maintenance plan as long as it is controlling the myeloma but we shall see.
I’m not sure this is very helpful for you Ian but I guess it shows we are all different even with the same treatment.
Having said all that I try and lead as full a life as I can.

[Author]

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