[GlynjParticipant]

The results were not quite what we expected from Johns BMb .The dr said the myeloma cells were still to high so he would need some radiotherapy has any one had this .

[DaiCroParticipant]

Hi Glynj,

Many of us have had radiotherapy as part of our treatment… tumours on and around the spine seem to be the most common but elsewhere as well. Where do they plan John's radiotherapy?

Dai.

[brochoParticipant]

Hi Glynj I have not had radiotherapy to reduce the myeloma cells as such but I have had it twice for pain relief and to shrink tumours. It was painless very quick , the first session takes about an hour to set it all up but each session afterwards was about 15mins In my case it was completely successful , especially the last time when I had unbearable pain. Both times the pain disappeared and the tumour was no longer evident. I had only one side-effect which was fatigue and that lasted for a few weeks but it was bearable, it does depend on where you are treated though Before I had radiotherapy I had thought it had little use in cancer treatment nowadays but when I looked into it I was impressed how precise modern techniques are They are now able to hit the offending areas from all angles and without damaging too many healthy cells. The succcess rate for treating spinal tumours is excellent Good luck John I hope you get your radiotherapy very soon and those numbers come down love Bridget

[GlynjParticipant]

Thank you for your kind replies. John has 1ag myeloma which is heavy chain it showed itself at 31% After high dose chemo Methalan – revelimid dex and a transplant own cells its still to high 10% to carry on to donor translant without radiotherapy don,t know how they do this yet .But have an app at hosp on 30 dec Hope everyone is good for christmas x

[Author]

Posts