My husband had his SCT in January 2018 and he’s been on maintenance treatment since then of Ninlaro and Dexamethasone. This year he’s been having telephone consultations after each 4 weekly blood test. For the very first time he’s been told his blood tests show that he is in “complete remission”.
Of course we are delighted and he’s a very happy chappy but I have a slight worry. At the end of his 6 month induction period his bloods showed he was clear but a bone marrow biopsy showed he still had 50% abnormal cells which is what it was before treatment. There was a change in treatment and he was lucky to get the trial drug Ninlaro which worked well for him and he could have SCT.
He hasn’t had a BMB since May last year. Should I trust that the consultants have taken into account that he was a non secretor? I really don’t want to upset my husband by bringing it up.
tmcintyre 5 years, 5 months ago.