[bill2009Participant]

What are people's experiences on revlamid? I'd taken it for 6 days and then picked up my first infection, spending a week in hospital on IV drip. Came in via A&E and waited 9 hours for a bed. Any tips to avoid infection? I have a young family and want to avoid long hospital stays. All tips and suggestions welcome.

[scott9Participant]

Hi Bill

Revlamid has been great for me. I started on velcade and that nearly killed me so my specialist switched me to Revlamid and that did the trick. I then went on it as maintenance but unfortunately it has now ceased to be effective so I am about to start a new cocktail of drugs. No great secret re avoiding infection, just try to stay away from crowds. Not easy though I know.

Good luck.

Scott

[eveParticipant]

Hi Bill

Just been catching up on site and noticed your posting.

I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.

My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him with lung problems,Some trust give chemo and antibiotics hand in hand,and there are trials starting to see if this is the way to go.

My own believe is yes it should be chemo plus antibiotics,as steroids mask infection so by the time you GP or hospital realise the damage is there.
Although my husband had pneumonia it took 15 days to realise the infection level was not going right down,and CAT scan showed lots of holes plus mass blood clots on both lungs,Damage done!!!!!

So my advice would be push for antibiotics,once you have damage its hard to get back to a normal level of fitness .Eve

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