Revlamid

This topic contains 50 replies, has 17 voices, and was last updated by  tom 13 years, 2 months ago.

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  • 24th August 2011 at 7:08 pm #97612

    BADGER
    Participant

    Congrats Carol great news keep on letting us know how you are getting on
    A lady in my support group was one of the first to get revlimid our MP fought to get it for her, she has been on it for nearly four years and now she has a dose of 15mgs every other day and no Dex she is well and her Para are stil 0 so plenty of hope there

    Keep well

    Love Jo 😉

    24th August 2011 at 8:55 pm #97580

    lorrainey
    Participant

    Hi Colin, Gill, Dai & Carol,
    Thanks for your replies, sorry i've not replied before but have for some reason missed ur comments :-/ I'm still doing ok, got lots of energy which I haven't had for a long time but still get tired alot. I have little pain in my back and ribs but nothing to worry about thankfully. I had my monthly blood test yesterday and feeling anxious about the results…i've always got myself worked up about them but moreso now with being off the Revlimid, I so hate this timebomb waiting to go off 🙁 I shall update when I get receive them, hopefully it'll be in the next couple of days.
    Take care my friends, love n hugs Lorraine xxx

    24th August 2011 at 9:04 pm #97614

    lorrainey
    Participant

    Hi Carol,
    That's fantastic news, really pleased for you >:-) As everyone says it's lovely to hear good news, but I understand how you feel because I too hesitated about posting about how well i've done on Revlimid. Njoy it!!
    Take care love n hugs Lorraine xxx

    25th August 2011 at 5:32 am #97615

    CarolBradley1
    Participant

    Hello Everyone

    Just a lne to thank you all for your lovely messages following my good news – a zero paraprotien level. You have all been so encouraging and just wanted to say that the last year has been made so much easier having such a support network to turn to. Nice to know that we are all welcome whatever our news is – good or bad.
    I have got into the habit of popping in here most days and can´t imagine not doing – the kind of support given here just isn´t available from anywhere/anyone else and it is invaluable.
    Prayers and good wishes to those who are struggling at present.

    Love Carol xxxx

    26th August 2011 at 1:35 am #97616

    mhnevill
    Participant

    Hi Carol

    Just wanted to add my happy respose to your good news especially as it comes just after i had read the sad news about Gaye and shed a tear for her.

    Like everyone else, I do hope the 0PP lasts and lasts and that the revlamid maintenance works well for you.

    Get out there and forget MM for a while.

    Love Mavis

    28th August 2011 at 4:54 pm #97617

    tom
    Participant

    Hi Carol
    Great news from you 🙂
    Its good to read good news these days, not been on here for some time and the post I have read have been for me very sad.

    Keep Well
    Love

    Tom "Onwards and Upwards" xx

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