[mandyhodgessky-comParticipant]

Hi! I’ve just registered on the forum.
I am currently on my second line of treatment(DVD) since diagnosis in 2017
Bloods, biochemistry and PP are all stable/untraceable but my Kappa light chains have been rising by 2 per month for some time now.
I have no new bone pain and am feeling well in all respects.
Has anybody else experienced this symptom of relapse.
One doctor has suggested a return to steroids ( which I stopped as soon as I reached remission with Daratumamab)but I find that they do affect my quality of sleep, mood and weight

[kh0305Moderator]

Hi mandyhodgessky-com,
Good to hear most of your blood parameters are stable but unfortunate about the kappa light chains. I’m afraid I don’t have any direct experience of just this symptom of relapse but completely understand your trepidation about returning on to steroids as they do have some unpleasant side effects. I would suggest speaking with your medical team to see if they have any other thoughts on treatment as no harm in seeking a second opinion or trying to get a gauge on how long they think steroid treatment might be needed. I’m sorry I can’t be of more help but wish you all the best in whichever treatment path you pursue and hope those pesky light chains are under control again soon xx

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