Hi Richard
So sorry to hear about your reaction to Septrin after your SCT. I also developed an allergic reaction to this antibiotic after my first SCT.
When I was diagnosed with myeloma in 2010, I had four cycles of CDT prior to my first SCT. During the four cycles of CDT I took Septrin on a regular basis without any problems. However when I relapsed some five years later, I began my second line of treatment which was VCD together with Septrin. During the first cycle of VCD, I started to feel as though my whole body was burning up from the inside, with my face going extremely red, skin starting to peel in thick layers from my feet and hands, together with a rash appearing all over my body. My consultant thought I was having an allergic reaction to either Allopurinol, Velcade or Septrin. I stopped both the Allopurinol and Septrin, but a blood test revealed my inflammatory markers were around 85, so I was admitted into hospital for monitoring and given fluids together with an antibiotic. My skin rash cleared after a few days and my skin stopped pealing. However unlike yourself, Septrin didn’t affect my white cell count or platelets. I completed the following 7 cycles of VCD without an antibiotic.
I am now on my third line of treatment which is Ixazomib, Revlimid and Dex together with the antibiotic Dapsone. I’ve just completed three cycles, but have noticed my inflammatory markers are starting to increase slightly which is being closely monitored by my consultant.
Good news that your blood results are recovering and long may this continue. Whenever you are admitted into hospital, or prescribed an antibiotic for treatment, that you are allergic to Septrin.
Jan
