Hi Steve
My husband is at KC
I take it your mother has had full body scan plus MRI BMB when diagnosed,full body scan would have shown lesions but shoulder blades are hard to define any new damage as not a flat surface.you do not say how much bone damage there is,but my advice is no massage because if there is damage there it would be so easy to have a break!!!
Myeloma with damaged bones is very painful,and what your mum needs is a slow release based drug over 12 hours,and use the liquid morphine only when needed,normally having Zometa infusion helps the bones,specially as its now 12 months.
The confusion ,could be tablets,or fatigue or pain all three,her pill regime needs correcting,and the truth of it is GP do not see many Myeloma patients,may be once in a life time!!!!!
My husband takes 30 m slow release OxyContin morning and night,any heavy pain he adds paracetamol as it enhances the OxyContin ,and can all so mask infection,so you do have to be careful.high doses of Dex do not help the muscles ,so excises is important.has your mother finished her course of chemo,and did she get any remission!!!!.
I think at the age of 80 plus the Myeloma,taking OxyContin slow release, is nothing!!!! You just need to get the tablets right,also a little excise walking,3lt of liquid a day good food,if mum is having problems with lack of fluid it causes confusion ,.
If you speak to Janny Baxter haematology nurse on Brabourne ward she can answer any of your questions..Eve
