[LesParticipant]

Hi All,

I wonder if anyone can help with a query.

My partner had his SCT 12 months ago and happily he is doing very well ,he is in good partial remission and all his consultants are very pleased, however he finds he is constantly tired after every activity , showering , walking the dog etc he has to sit for half an hour to recover, his breathing is very laboured and he constanly feels ‘shattered’.

He’s has had  CT scans , heart xrays and the consultants again say everything is OK  and the breathing problems are possibly due to the body reacting to the stress of the drugs etc he’s had over the last 2 years.

All this is great news but I wonder if anyone else has this tiredness/ breathing problems.

Any info would be greatly appriciated.

Thanks

Les

• This topic was modified 10 years, 1 month ago by  Les.

[jeff605Participant]

Les, hallo, reading your message, when I was on Velcade and Dex I found it had very similar effects to those you described, particularly the tired part. As you said after any effort extra to ordinary tasks would leave me shattered and sitting down dozing off. Since stopping Velcade and Dex I am now on Revlimid and Dex, and feel ( although I have had other problems which have upset things a bit ) much more with it, and am doing a bit of light gardening and playing in the garage. So hopefully your partner’s tiredness etc., will ease in time.
Long may his remission last, regards Jeff

[LesParticipant]

Thanks for the reply Jeff, good to hear from people in the same boat as you’re never sure if the way you feel is ‘normal’  (what ever normal might be ) for a person with Myeloma. since his SCT  he’s only taking water and bloodpressure  medication so fingers X’d he’ll feel less tired as time goes on ,

Thanks again and hope you can increase you’re activities soon.

[dickbParticipant]

Hi there,

I did and still do suffer breathing difficulties but mainly when climbing stairs. I can ride my bike or carry out moderate exercise without too much trouble but the momenmt I need to physically use my legs, I am out of breath. With me initially it was because I had pneumonia and I still have some lung damage but if I remember rightly, MM affects your Heamoglobin count and it’s the red blood cells that carry oxygen around the body. So if you are aneamic than perhaps that could be the course of breathlessness.

[LesParticipant]

Thanks for the reply Richard, it’s good to know there is support  out there.

[the-old-manParticipant]

Hi,

Like Jeff, I had treatment on Velcade, Dex and Cyclophosphamide and, as progress was slow( a bit like my school reports ‘ Satisfactory but could do better’) I was switched to Revlamid and Dex. It turned out that I had an unrelated cancer in my bowel which may have affected my progress. The bowel cancer was removed and all is reasonably well.

Fatigue and breathless are a bit of a problem. The consultant thinks the breathlessness could be a result of the pulmonary embolism that I had just as treatment for the MM was about to start, for it left blood clots in my lungs.

Two flights of stairs and my legs go wobbly and I sit and suck in air for a few minutes. Otherwise, I’m coping ok and so accept these two things as bearable.

Next month I’ll come to the end of the second cycle of treatment and await the appraisal of my progress. We’ll see how things are then.

Good luck everyone.

Don

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