[twinzParticipant]

I finished 4 cycles of DVT just over a week ago and have
Peripheral Neuropath in my feet and hands. It is numbness and not
Pins and needles and just wondered if anyone else suffered this and how long it took for things to get back to some form of normality.
I cannot write or use cutlery properly and the numbness in my feet is affecting my ability to walk unaided.
Any info would be appreciated.
Thanks

[kh0305Moderator]

Hi Twinz,
Unfortunately neuropathy does seem to be a common problem with the MM treatments. My dad is currently undergoing treatment with ixazomib, dex and revlimid and also experiences it along with severely shaking hands which makes eating and writing difficult. As I recall from his last treatment back in 2013, the neuropathy and shaking gradually ceased when he came off the meds (the dex was the worst contributor we think) but it did take a while to get back to normal, unfortunately I can’t remember how long it took but it does get better with time. I hope it isn’t too long for you xx

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