[annetteParticipant]

Dad is ill again. The same chest infection has taken grip again 🙁 he's on a new anti biotic but the myeloma is also spreading 🙁 He has small lumps now over his body which the doctor says are part of the myeloma. He's so very tired and so weak. I just can't bear to see him like this. My dad. I'm being strong in front of him, chatting and laughing with him when he's awake but it hurts so badly, I actually know what that phrase lump in your throat means, and can actually feel pain in my heart. My dad is fading and there is nothing I can do about it 🙁

[tomParticipant]

Dear Annette
I am so sorry to read your dad has got the chest infection back, I wish you strength to get through this and I also hope your dad has the strength to fight of the chest infection and that they also find something else to pull his MM into line more.

Love and Hugs for you Annette at this difficult time.

Tom Onwards and Upwards xx

[annetteParticipant]

Hi Tom, thank you. He is just on dex on a mon & tues now. CDT for 6 months put him in remission for only a month and the myeloma continued to spread despite Velcade plus he reached the end of the max no of cycles. Then unfortunately he had a very nasty allergic reaction to Revlamid and so has been told there is nothing more they can do to treat the myeloma, only it's symptoms.

the anti biotics appear to have kicked in and hes a little brighter this eve but still sleeping most the time now in bed 🙁 xx

[eveParticipant]

Hi Annette

You are doing something for him Annette,you are being with him,and keeping strong in front of him,this is the time to sit and listen let your dad talk,if he wants to talk about death,do not stop him,just listen,he will not talk about it,if he thinks its going to upset you. It will give you the chance to say anything you need as well.

You are giving your dad the greatest gift you can,that's just being with him:-) many people can not do it.
Just do your best. Love Eve

[tomParticipant]

Annette

You are more than welcome, its a shame that nothing else is available for the Myeloma, I hope they keep your dad Comfortable.
Don't forget to rest up yourself during this difficult time.

Love Tom x

[mhnevillParticipant]

Hi Anette

Sorry you and your Dad continue to have a very difficult time.

As I've said before, do try and make each day as good as you can. Hopefully the infection will abate a bit and you can share some happy memories of past days together.

Well done for keeping so strong and as a eve says, you are doing the most precious thing for him that you can, which is being there on this last difficult journey. You being there for him will help him keep calm and less fearful.

Lots of love and prayers for you both that when the time comes death will come as a gentle friend.

Mavis x

[annetteParticipant]

Eve … thank you so much xxxxxxxx

[annetteParticipant]

Thank you all, this forum is a real comfort. I hope I will be able to provide comfort for others in the future in the same way. Dad us now very confused and often agitated. His infection is not responding to anti bs and so now we just wait. He is coming out in large lumps all over doc says myeloma spreading. Macmillan are coming today and our doctor has told us now is the time to get close friends/family in if they would like to come say goodbye. His vicar came yesterday and gave him last rights. I am praying that God takes him home soon now as he is comfortable at the moment. Xxx

[jmsmythParticipant]

Hi Annette

I have been following your post but didn't reply as I just didn't know what to say to you. My thoughts and prayers are with you and your dad at this terrible time. Your dad has a very devoted daughter but as Tom says take care of yourself

God bless
Love Jean xx

[dickbParticipant]

I cannot offer any real words of comfort nor empathise for I have not been in your situation. I can offer you my best wishes and hope that things come to a head in a peaceful and dignified manner.
All the best.

Richard

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