My wonderful sister (in law) was diagnosed last year. Over the summer had Velcade twice a week for 6 cycles. Stem Cell Transplant in November – very ill during & took ages to recover. 110 days post sct MM now back. Drs using words like rare & aggressive & trying to figure out best way to treat. Three weeks ago she was walking with aid of crutches & waiting for hip replacement date. Now due to Neuropathy cannot walk, left arm also affected & fears that progressing to right side. Pain is chronic but beginning to be managed better. She’s 47! Lives 200 miles away. Finding it difficult to make sense of it all & process the speed of progression. Playing a waiting game & hoping that they find a chemo to stop it in its tracks!!
Found this resource. Wonder if I can find a positive by helping to support others?
