[juliecParticipant]

My husband had blood tests last year as he was suffering from IBS, it came back showing his platelets count was around 90, he had repeated blood and one came back normal, but then another 2 were low again. He was referred to haematologist in March, and was advised to have a scan on his spleen. Due to covid he didn’t have the scan till November. In the meantime the gp ran blood test again and in September his platelet count was normal, but then in November it went down to 120 and then following a repeat 99 then 94. He saw the haematologist yesterday who said the spleen scan was fine and he thought he may have a Pseudothrombocytopenia and to repeat blood test in 6 months, but he also mentioned that he has protein in his blood (6g) and said because of this they are keeping him on there books, but didn’t say anymore. I have since look this up on internet and am very alarmed that this may lead onto multiple myeloma. I am now very worried as this hasn’t be explained to us, and from reading about it on the web it say anything over 3g protein is smoulding myeloma that nearly always progresses to multiple myeloma. Is this correct as his white and red blood counts are normal? And they are not doing any tests on his bone marrow.
Thanks

[shaun3Participant]

Hi Julie,

sorry to hear your husband hasn’t been well. I think early diagnosis, not matter what the illness, is always preferable. My paraprotein level was 27.1 when I was diagnosed almost 3 years ago now (age 52). Luckily I was diagnosed early. But there are a number of factors needed to confirm a diagnosis of myeloma and paraprotein levels are just one. Your haematologist should be well equipped to look out for MM. But always worth pushing and asking for a second opinion – in my view anyway.

Anyway, good luck to you both and Merry Christmas

Shaun

[juliecParticipant]

Hi

Thank you for your reply.
Hope you don’t mind me asking but is yours MGUS or Smouldering? The doctor we saw didn’t say which my husband had, all we was told was level 6g but don’t know if this puts him in the Smouldering category as it says on web >3g/dl is Smouldering. But then on other sites Smouldering >30 g/l. So unsure if his 6 is g/l or g/dl. Could I ask what yours is measured in?
Thank you

[shaun3Participant]

Hi Julie,

no problem. My diagnosis was Multiple Myeloma. I wasn’t diagnosed with MGUS or smouldering myeloma. But the assessment was tht it was stage 1 at diagnosis which clearly was a good thing. And at tht time my paraproteins were 27.1g/l. But I do think its important to recognise tht paraproteins are only one aspect of a myeloma diagnosis. This might help, but I would also strongly recommend you get medical advice from a Myeloma specialist:

https://onlinelibrary.wiley.com/doi/10.1002/ajh.25117

Good luck

Shaun

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