Smouldering Myeloma Initial Symptoms

This topic contains 2 replies, has 3 voices, and was last updated by  katerinelopez0403hotmail-com 1 year, 2 months ago.

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  • 20th October 2020 at 6:45 pm #141553

    mikehardy
    Participant

    Hello
    I have been smouldering for 5 yrs.
    Additionally I have Ankylosing Spondylitis.
    My main pain areas for AS are SI joints, lower spine, neck and joint pains. Also, fatigue.
    Recently I have been experiencing new aches mainly jaw bone and other minor twinges.
    These could well be AS related.
    I would like to hear from anyone their experiences in intial symptoms transitioning from SM to next stage.
    Many Thanks
    Mike (age 72)

    23rd May 2022 at 2:22 pm #143277

    mazza
    Participant

    Hi

    I was diagnosed with smouldering myeloma last October. I haven’t got symptoms yet so am not having any treatment yet. Just watchful waiting at the moment!

    24th September 2023 at 8:15 pm #148257

    katerinelopez0403hotmail-com
    Participant

    Hi, I was diagnosed last month. The diagnosis was SMM but the doctor is starting a treatment with Zometa (zoledronic acid). Do anyone has had that type of treatment?
    I read that SMM should not be watched and no treated but I am confused why the treatment? Is it because I am high risk? Any help!!
    Many thanks

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