My husband Mike has been in remission since Jan but his Amyloidosdis has come back bad. They are talking of a SCT if his heart is fit enough. He has stage 3 Cardiac Amyloidosis and is on Peritoneal Diaylsis. They have told us it’s a very serious and risky operation but is his best chance of a long remission. The other option is chemo for 18+ months. Both don’t sound very good and it’s come as a big shock that it’s come back so soon.
Hi there, if you at the thread Buddy’s wanted – Stem cell harvest – Dec 2013 – in Treatment, there is a lot of info from three of us that went through it at the start of the year. It’s like a diary so should give you some usefull insights on what to expect.