[lyshz03Participant]

Hi

Well the SCT is all over & he’s now on 2 months consolidation treatment, getting over the first week which has been hard. Eventually he started feeling almost normal after having his SCT in January & now he’s back to treatment it seems such a shame because he was feeling so good & this week he’s felt ill again & his walking has been affected I’m hoping that as it’s only for 8 weeks he will recover again before going onto maintenance treatment. Will we get our lives back to some kind of normal after this has anyone else felt that maybe the consolidation treatment makes things worse or is it really worth it? I’d be very grateful for any response.

Many thanks,
Lynn

[dazzParticipant]

Hi lynn,
Obv’s we can only speak from our own experiences and everyone’s is diff.
I’ve had 2 sct and they worked well for me but I am alot younger which will defo make a diff to the recovery time! As for your lives getting back to norm, I thk you’ll have to accept that there will be a new type of norm but and manage it diff, but as his recovery gets better the new norm won’t seem so bad but it’s the time factor for healing that I thk your finding hard to adjust too. My treatment now has put me in recovery mode and it takes it’s toll…esp on our partners too! Try to ride the wave as it will eventually get better.
Good luck
Daz

[lyshz03Participant]

Hi Daz,

Yes I’m sure you’re right it’s just such a difficult thing to adjust to hopefully things will get better again soon. Thanks for responding 😊

All the best Lynn

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