[nemoetomnisParticipant]

My partner is due to start the SCT protocol next month. Most of it will be in an outpatient basis at home. However, the reinfusion part of the process requires a 4-week inpatient stay in isolation at a distant hospital.

From what I understand, this time is the highest risk, with my partner’s system severely compromised, needing blood transfusions and rigorous infection control.

What can I do to support during this time?

It seems that I would probably be the greatest infection carrier risk if I were to visit daily. I can’t bring in favourite foods because of the controls on diet the protocol demands.

Being on the end of a Zoom call doesn’t bring practical help.

It’s 4 weeks confined to a single room. I fear for the effect that will have.

What suggestions might you have, please?

[rabbitParticipant]

Hi nemoetomnis,

Looking after your partner could be challenging in its own right while they are at home.

Therefore, when – as you say yourself – it is simply impossible for you to help your partner for weeks, I suggest this: look after yourself!

Take some time, although I obviously don’t know what other commitments you may have (work, family etc) to look after your own health (rest, exercise, eating healthily). Maybe pamper yourself too! Your partner will be in excellent hands.

You deserve it,

Regards
Rabbit

[nemoetomnisParticipant]

I didn’t say it was impossible, and I am appealing for suggestions.

I can’t see what I can usefully do, but maybe others can? Has anyone here been through this process, either as patient or carer, and is able to say what helped?

Is there a positive impact of simply me being present for even a short time every day? Would me being at home and a airplane trip away be hard to take?

• This reply was modified 1 day, 3 hours ago by  nemoetomnis.

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