The Amyloidosis Research Consortium in the US wants to find out more about patients with cardiac amyloidosis and their journey to diagnosis, both in the US and other countries.
If you are an AL amyloidosis patient, or a carer/family member of an AL amyloidosis patient with cardiac involvement please consider completing the relevant survey (links below). The results will be shared at major medical conferences and used to educate, engage and inform healthcare professionals about ways to diagnose patients earlier.
AL amyloidosis patients can complete the survey online at: https://www.surveymonkey.com/r/S67WZFG
Carers/family members of AL amyloidosis patients with cardiac involvement can complete the survey online at https://www.surveymonkey.com/r/S6SQQSG
Thank you for your help.
sueperkins 7 years, 9 months ago.